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Commissioned by the Alpha-1 Foundation Ireland in collaboration with COPD Support Ireland and funded by the Health Research Board, this educational film describes the genetic condition alpha-1 antitrypsin deficiency (or Alpha-1 for short).
People born with Alpha-1 do not produce enough alpha-1 antitrypsin, an important protein which protects the lungs. They therefore have increased risk for the lung disease chronic obstructive pulmonary disease (COPD). 1 in 25 Irish people carry the defective gene that causes Alpha-1.
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The late John O’Donnell from Donegal was a talented poet who developed lung disease at a young age. Limited physically by his condition, John became a keen observer of the world around him, including nature and his local community, and this inspired much of his poetry. Tragically, John passed away in 1987 at the tender age of 26. After his death his family learned that his lung disease had been caused by Alpha-1.
John’s family published a posthumous collection of his poetry and kindly presented this very special book to the Alpha-1 Foundation. If you would like to buy this book of poetry please visit the Online Shop Here. All proceeds go to the Alpha-1 Foundation Ireland.
A special thank you to the O’Donnell and Gormley families for sharing John’s beautiful collection. If you would like to read more about John O’Donnell’s story click below.
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